Last week Inga had an appointment with cardiologist. SMA does not affect heart muscle but we want to make sure everything is fine. Some doctors advice us to treat Inga with Salbutamol – although it is asthma medication it is proved that some SMA patients can benefit from that drug as well (http://www.smasupportuk.org.uk/salbutamol).
Appointment hasn’t been an easy one – Inga was overwhelmed by ECG, USG and other medical equipment. She did not want to cooperate and had lots of fears. But it is not the end – next week we have an appointment for 24h heart study. We hope it won’t be so stressful for our Inga like the last one.

You may find some great pictures from Alaska on our friends website. They’ve climbed Denali to raise SMA awareness and help all children affected with that disease. http://kartkazpodrozy.pl/denali-expedition

Thx everyone who support us! https://www.justgiving.com/crowdfunding/FIGURKA

On the photo: Our little woman with such a big problems…