Last month Inga had two neurological appointments – in Wroclaw and in Cardiff. Unfortunately – they did not contribute much to Inga’s health. Doctors has just verify SMA progress. Disease progress is much more slower that doctors expected – which is good. We think it is all about constant and systematic physiotherapy. Inga’s legs showed no neurological reflexes but hands are still ok.

We hope one day (sooner than later) at one of this appointments Inga is going to get longed-for treatment…

Only few weeks left to SMA Awareness Day – 30^th September 2007. Please help us by sharing this message: https://www.thunderclap.it/projects/60715-sma-awareness-day-30th-sept-17

Inga is growing so fast. But it is possible to notice that once she wear her splints. Be strong!