We have been waiting for a SMA drug 84 weeks already… At the beginning waiting was a little bit pointless – there was no treatment available then. Now SMA drug exists and waiting become more real. We are separated from treatment only by legalities and money of course. This week Italian government has announced that it will reimburse Spinraza (SMA drug) for every affected person in Italy. https://www.treatsma.uk/…/spinraza-will-be-offered-in-italy…
We can only imagine that happiness in all SMA families in Italy. We wish we could share same emotions soon. So far we look at that fantastic drug “through the glass” and admire its power in other children bodies…Last week Inga “went shopping” and took all her bags, dolls and even her buggy. Playing while standing in frame and wearing splints brings Inga so much joy and happiness!