All the best in New Year!
May that new 2018 be better, much better than previous!
May all your dreams come true, we have only one…

Year 2017 was a good year. A year of hope. The first SMA drug has been approved (Spinraza/Nusinersen) – longed-for, hoped-for, looked-for treatment. SMA has stopped to be terminal disease. Unfortunately treatment price is extremely high and reimbursement process seems to be veeeeery long. We wait trying to find other solution “meanwhile”. We hope we will manage to start treat Inga this year. We must! With these positive thoughts we are entering 2018!

Photo by Steve (Photographic FLICKR site) – Thank You!