Yesterday Inga went with her brother on skating rink to see how he skates. She was very excited about that much less we have just watched speed skating in TV during Olympic Games in Korea. Unfortunately her joy has disappeared the moment she spot high fence around ice rink. She looked like she wants to skate, laugh, fell down and the stand up again and skate around. But it is simply impossible on a wheelchair… In the moments like this one we realize how much was taken from Inga because of SMA. And even we do as much as we can to let Inga feel “normal” we just cannot give her more strength. We wait for treatment hoping it will stop SMA progress and dreaming it will allow her to stand on her feet one day…
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