Last week we had a winter visiting our neighbourhood. Although  it wasn’t American  polar vortex but just small frost and snow – it made our life a bit difficult. It is even more difficult for Inga – frozen wheel rails made her fingers very cold, winter jacket limit her hands movement, legs get cold faster because they stand still at footrest. Additional factor is “cold-hate” inherited from Inga’s mum. Our girls simply wait for spring to come!


Besides fact Inga is chilly person she is a bright child. And children simply love snow. As soon it appeared behind windows she asked her brother to go outside to have snowball fight. That was a moment of real joy and happiness for Inga. Moments like this one are a great motivation for us, parents, to keep on fighting for Inga’s health and independence. Our fight against SMA goes on!