At the beginning of this new year we would like to wish you a lot of health and joy!
We would also like to thank you for your presence in 2019. It was an important but also a good year for Inga. We have started the second year of the clinical trial, when Inga is definitely given an active drug and not a placebo. In addition, Inga went to the year one of primary school, learned to swim and dive, she was riding a lot on her beloved horses. We also were doing a lot of physiotherapy with Inga, what in connection with the treatment in Italy gave effect of stopping the disease progress and a slight improvement of some of Inga’s skills (crawling, climbing stools and sofa, length of staying in leg splints).
We hope that this year will bring even more good news. We count on the quick process of approval and refund of the medicine that Inga is taking (Risdiplam).
We also hope that you will be still with us and together we will fight this SMA monster for a better future for our Inga!
Happy new year!!!