Since diagnosis seems like we don’t live our lives, everything is somewhere a side. On one hand we we’d like to turn back time to see Inga walk again. On the other hand we wish to jump into future when all SMA drugs are approved… Once we think about that it is really hard to […]

INGA. Name “Inga” has got Germanic origins and means a “Daughter of Hero” (that meaning commits a bit 😉 ) Once we were thinking about name for our new-born daughter wanted it be beautiful, international and simple at the same time. Looks like it works now. Wasn’t easy for Inga to speak her name at […]

Time goes so fast… EURO Championships 2016 has just started and we don’t even notice when they’ve finished… Yesterday we’re watching final together with Inga. She enjoyed the game, even to much – screaming “goal, goal, goal” all time long 😉 While players were playing we’re watching our daughter and dreaming she’ll be able to […]

It is really hot summer this year in Wroclaw. Inga and her mummy enjoy that very much (brother Maks and daddy are not so happy about that weather 😉 ) Despite that heat we attended a photo session made by our friend Beata (www.facebook.com/beatamuchowska.fotografie). Pictures are so great! It is a beautiful gift for Inga […]