163 weeks since diagnosis

We are slowly approaching Inga’s fifth birthday. Although the real ones are on April 20th, because of the hospital visits and the rehabilitation camp next 2 weeks Inga organized a birthday party for friends this weekend. The fun was great, many gifts received, joy everywhere. And we were probably most happy to see Inga’s happiness, […]

161 weeks since diagnosis

We have written to you recently how we try to do some exercises with Inga at every possible moment when we play with her. But nothing can replace real physiotherapy, during which we perform exercises in accordance with the best knowledge and experience of physiotherapists. Our “home” Neurorehabilitation Centre is a bit far away from […]

162 weeks since diagnosis

April came – the month of Inga’s birth. We are back in time for Inga’s 4th birthday a year ago: nervous waiting for an e-mail or phone call regarding a clinical trial, handling all formalities related to the registration, finding a flat, moving … In what other world we are living now, a year later… […]

160 weeks since diagnosis

Last week we wrote about the exercises Inga was doing on the swing. This week we also found a swing – but this time, Inga was able to touch the ground. It turned out that it gave her a great joy! In the end, she could, like the famous Dorotka from children’s song, “in the […]

159 weeks since diagnosis

Every day, we get caught up in the fact that whatever we do, we think about how to put some physio exercises to do when playing with Inga. When she walks in orthoses, we mobilize her to try to stick with just one hand and try to lift things from the floor. When we go […]

158 weeks since diagnosis

As we’ve already mentioned, Inga spent the entire last week in a rehabilitation camp at the Neurorehabilitation Center. In addition, she took part in hippotherapy classes in the afternoons. It’s hard for us to judge how valuable they are to Inga when it comes to strength and coordination of her movements. What we know for […]

157 weeks since diagnosis

This week means a lot of effort for Inga, who is taking part in the rehabilitation camp at the Neurorehabilitation Center. A few hours a day, she bravely exercises with many physiotherapists, to keep her muscles in the best condition and stimulate them for greater work. Believing that the drug works on Inga, we realize […]

156 weeks since diagnosis

This week has been marked by thinking about the last three years we have spent fighting against SMA. Our thoughts ran especially to the day of the diagnosis – February 25, 2016 (http://inga-figurka.pl/en/2018/02/16/2-years-since-diagnosis/).   Although so much time has passed, the memory of this day is still very vivid. It causes sadness and sorrow. The […]

3 years since diagnosis

Today around midday there are 3 years passing since diagnosis… So much have changed through this time… So much sadness, tears, nerves, uncertainty, fears of tomorrow… So many self-sacrifices and efforts to change live into better after diagnosis… So much love and happiness we hade to discover once again in our lives… So many e-mails, […]

155 weeks since diagnosis

Sometimes we do not realise how much Inga’s live is influenced by issues related to treatment and hospital appointments. Being in science museum the biggest joy Inga had in “hospital corner” of children’s city. White coat, stethoscope, ambulance and within a moment Inga became professional doctor. She knew all necessary procedures while doing blood test […]