262 weeks since diagnosis

Inga’s life, unfortunately, is not only about dancing and fun, but also frequent check-ups in hospitals. SMA affects not only the muscles of ner legs but also other parts of the body. Inga needs to check her breathing regularly, especially while sleeping. In addition, we constantly control the shape of her spine – weakened muscles […]

5 years (261 weeks) since diagnosis

Like then, February 15, 2016, today is Monday. It’s been 5 years since the worst day in our lives. The day that turned our lives upside down. Every anniversary brings back memories – the doctor announcing the diagnosis, the most difficult phone call of Inga’s dad to her mother, crying and despair… However, it wasn’t […]

259 weeks since diagnosis

Finally, the day we have been waiting for almost 7 years has come – Inga took her first independent step without any support!!! She was wearing leg splints, but it doesn’t change the fact that for the first time in her life, she didn’t have to hold on to anything! When she was one, it […]

226 weeks since diagnosis

Long, long time ago in another galaxy… It was 24th June 2014 – despite Inga’s (and her mother’s) support Italy lost to Uruguay and they had to leave 2014 Brasil Wrold Cup… Who would thought then that Italy will have a greater meaning in her live than only supporting Azzurri. ⚽️⚽️⚽️ Thank you Milan, Grazie […]

224 weeks since diagnosis

Dear all. It’s been 3 months since Inga and her family spend time at home. However, no one is bored here. Inga’s mum set the schedule for each day and there is no option to get out of her/his duties. The only more serious thing outside the schedule was a visit to the orthotic clinic […]

223 weeks since diagnosis

This week Inga was supposed to take part in the finals of the wheelchair dance competition … Unfortunately, the pandemic thwarted the plans. That is why we remember her eliminations from January and look forward to the possibility of dancing again with other participants. In the meantime, Inga diligently learns to dance during video classes […]

220 weeks since diagnosis

We’ve been sitting at home for over 2 months. Hours, days, weeks pass by… We apologize that we haven’t spoken for a while, but paradoxically spending all the time with children at home there is no time for anything … Do you also have such feelings? 😉 Due to the pandemic, almost all Inga’s medical […]

218 weeks since diagnosis

These are the last days in Poland to decide which charity will receive 1% of your annual tax. We ask everyone to remember about Inga and her charity. Those who want to support Inga’s physiotherapy and treatment from abroad please visit: https://zrzutka.pl/9p5w48 https://www.justgiving.com/crowdfunding/milan5 Thank you!!!

217 weeks since diagnosis – Inga’s 6th birthday

Inga’s sixth birthday, long awaited by her, has finally arrived. For obvious reasons, it does not look as planned. But thanks to you and our family it’s equally nice and beautiful. There was, prepared by mother and Inga herself, a “corona-cake”, there were gifts, there were morning preparations and choosing the right dress. It was […]