197 weeks since diagnosis

This weekend we visited Mrs. Alex again. During the hour and a half session she gave us a good piece of exercises. There was her control of exercises already performed, there were several new ones, there were instructions for parents regarding the correctness of physiotherapy performed. There was also a moment for fun and a […]

196 weeks since diagnosis

It’s finally here! The new Inga’s electric power wheelchair! Inga is very happy – for her it is great fun and joy. We know, however, that it is also so needed independence and the ability to catch up with others around. Inga’s manual wheelchair, which is usually used, makes her feeling great. But when we […]

195 weeks since diagnosis

Today we would like to thank everyone who helped Inga and donate her fight against SMA. Without your support, treatment in Milan would not happen at all. That is why every of you who helped us may feel joy and happiness – just like Inga does in attached film (She thanks everyone for help being […]

194 weeks since diagnosis

This week, Inga is undergoing another series of tests as part of a clinical trial. 538 days of treatment are already behind us. 538 quite difficult days, full of sacrifices, travels, examinations, meetings, documents. During these 538 days Inga had 262 visits with specialists (we are shocked after we counted!!!), including all doctors, physiotherapists, hydrotherapy […]

193 weeks since diagnosis

Inga spent last week at a rehabilitation camp. And it was a very difficult time of hard work and intensive exercises. However, nobody complained – thanks to the exercises Inga is able to maintain and even develop his fitness from the time of start of treatment in Milan. Physiotherapists are very impressed with the work […]

192 weeks since diagnosis

This week, Inga is again participating in a rehabilitation camp at the Neurorehabilitation Center, financed from the funds raised by all of you during last year. We are constantly thanking you for this help. Thank you!!! Inga also learns to ride horses during hippo-therapy sessions (thank you again for Inga’s birthday fundraising!). She likes it […]

191 weeks since diagnosis

It’s been 2 weeks since the last entry. But it doesn’t mean that nothing is going on around our Inga. In fact so much is going on in total that we have recently found that the day has not enough hours… Inga continues to travel to Milan – for another portion of the medicine and […]

188 weeks since diagnosis

At the weekend we visited Mrs Ola again from Alex’s Place (https://www.facebook.com/Alexs-Place-Paediatric-Physiotherapy-Service-VojtaNDT-BobathSICST-1534152917919150). Inga loves to visit her office. She cannot stop to enjoy the amount of orthopaedic equipment that is around and would like to try everything. Hence, physiotherapy is fantastic there. The professionalism and sense of Mrs. Ola plus exercises enchanted in the form […]

186 weeks since diagnosis

This week, Inga had her legs cast taken, necessary for additional splints. They will be short orthotics that will protect the ankles. Inga, becoming a little stronger, tries to support her weight on her legs more and more often. Unfortunately, her joints cannot keep up with her muscles and are very, very unstable. We hope […]

185 weeks since diagnosis

It’s been 2 weeks since the last post. A lot was happening at that time in the life of Inga, who was on holidays, and then returned to the daily duties of the 5-year-old. We are still thinking about the holiday season though. It would seem that this is the perfect time to recharge the […]