217 weeks since diagnosis – Inga’s 6th birthday

Inga’s sixth birthday, long awaited by her, has finally arrived. For obvious reasons, it does not look as planned. But thanks to you and our family it’s equally nice and beautiful. There was, prepared by mother and Inga herself, a “corona-cake”, there were gifts, there were morning preparations and choosing the right dress. It was […]

216 weeks since diagnosis

Dear all! On this special day we would like to wish you a Peaceful, Happy but above all Healthy Easter. For six years, Easter Sunday has been a bit more special for us, because Inga was born at that day (although it was April 20 then). Despite the epidemic, we managed to decorate and prepare […]

215 weeks since diagnosis

Our Inga’s sixth birthday is approaching. It will be a little different than all previous ones. This does not mean that it will be worse. Because a family birthday is the greatest happiness. Other joys, such as partying with friends, riding a horse or going out to the pool have to wait for better times. […]

213 weeks since diagnosis

We cannot stop thinking about “our” Milan, where 2 months ago Inga had hospital appointments and received new portions of the drug. The capital of Lombardy is a wonderful place. First of all, it has healthcare (from our point of view). But besides hospitals and clinics, it is a place of beautiful monuments, wonderful museums […]

212 weeks since diagnosis

Due to COVID-19 threat Inga does not attend school anymore. She has weak breathing muscles what puts her in the highest risk group. We are very worried about her. We hope that epidemic will be tackled and nothing bad will happen to Inga. Staying at home does not mean having holidays. Inga does her homework […]

211 weeks since diagnosis

We follow the reports of the coronavirus epidemic in Northern Italy with great concern. This is where Milan is located – a place where Inga comes every month for tests and for a new portion of medicine. This time next week’s visit was cancelled and the syrup will be sent to us by courier. Due […]

210 weeks since diagnosis

Auction for Inga still available at: https://charytatywni.allegro.pl/listing… Inga has started professional swimming lessons. Summer fun in the pool tame her with water so much that after a few lessons she can now swim freely on her back and is doing better on her belly. Exercising in water is greatest physiotherapy. Thank you for supporting Inga’s […]

209 weeks since diagnosis

This year, Polish SMA Foundation came up with the idea of the action: “What would you say to yourself after the diagnosis?”. And we often wonder: What we could say in February 2014, trembling and crying Inga’s mother and what we could say Inga’s father, who was already packing for going abroad… We would certainly […]

4 years – 208 weeks since diagnosis

Last week, four years have just passed since this unfortunate, worst in our life, Monday – February 15, 2014 … The anniversary of the diagnosis always arouses great emotions in us. We remember this day (although, in general, Inga’s mother prefers not to remember it) very clear. We remember the huge amount of help that […]

207 weeks since diagnosis

After last week’s wheelchair dancing craziness this weekend it was time for rehabilitation with Mrs Alex. The huge room and the plenty of the equipment means that Inga not only wants to exercise, but she is almost breathless, spinning everywhere, trying to climb on every device. And believe us, breathlessness caused by physical movement in […]