Last week, four years have just passed since this unfortunate, worst in our life, Monday – February 15, 2014 …

The anniversary of the diagnosis always arouses great emotions in us. We remember this day (although, in general, Inga’s mother prefers not to remember it) very clear. We remember the huge amount of help that flowed from you right after it turned out that Inga suffers from SMA. It’s hard to believe that we managed to survive all this, somehow reorganize our lives and try to simply live back. Although it just never will be simple and ordinary …

Sometimes we think about what would happen if Inga did not start treatment in Milan. We will never know this exactly, but mentioning the progression of the disease and other cases of untreated children with SMA, we know that today Inga would no longer be able to crawl, what means she would not be able to move. At best, she would sit with support – unless she lost strength in her forearms. We would probably have to put on her orthopedic corset so that she could function vertically at all. Strongly progressive scoliosis (curvature of the spine) would impede her movement, breathing and nutrition. Frequent respiratory infections (lack of strength to cough), problems with swallowing and eating would appear. She would probably need breathing support at night using a respirator. Inga could lose control over keeping the head upright, her hands would be very weak. Inga could not write or draw. In general, Inga would become a person totally dependent on our help. We could only dream about such “luxury” as walking in splints or wheelchair dancing. These are hard thoughts. And these are the thoughts we had in front of our eyes in the first days after diagnosis …

Thank you for being with us for 4 years. Thanks to your help, Inga can continue to fight her illness. Funds from public collections, individual payments and, above all, 1% tax return (in Poland) allowed to start treatment in Italy and gave hope for a better future.

Thank you !!!

Those who want to support Inga’s physiotherapy and treatment in Milan may visit:
https://www.justgiving.com/crowdfunding/milan5
https://zrzutka.pl/9p5w48