Inga is almost recuperated after last week infection. She’s full of energy again. Wasn’t easy to back to regular exercises. Once she find out there’s a life without physiotherapy it is hard to convince her to exercise again. Much less she talks now and starts to beg: “Mum exercise no” or “Dad leave me”… We don’t give up and exercise cause we know how important it is for her future.
We’ve enjoyed with information that the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) has granted Accelerated Assessment for the Nusinersen Marketing Authorization Application (MAA) for the treatment of European patients with spinal muscular atrophy (SMA). http://www.ionispharma.com/chmp-ema-granted-nusinersen-acc…/
This weekend our friends from Warsaw has made huge Inga charity party! There were lots of Inga’s pictures, delicious food, special tickets, many children and great fun! We thank you so much! You are great! Thank you haven’t left us alone and always be with us.
Last week was also a big “step” for Inga’s mobility – she has tried her first manual wheelchair… She is smart and had no problem to steer it. But Inga’s mummy has experienced a big sadness seeing her daughter sitting on this kind of chair…
