Weeks go by since diagnosis and we need to live our lives. Last weekend Inga had her “name day”. There were plenty of wishes. Most of them express everyone’s will Inga be healthy again. How important is to be healthy we clearly understand now. We would like to so much wish of being healthy comes true one day…
Most touching wishes Inga received were prepared by Inga’s brother friends from his school class. They have made most beautiful greetings cards we could only imagine. Thank you!!!

Last week Biogen company announced that its New Drug Application (NDA) for nusinersen, an investigational treatment for spinal muscular atrophy (SMA), has been accepted by the U.S. Food and Drug Administration (FDA) for Priority Review, and that the company’s Marketing Authorization Application (MAA) has been validated by the European Medicines Agency (EMA). Countdown has just started!!!
http://www.curesma.org/…/biogen-nda-nusinersen-accepted.html