There are moments we think Inga’s disease doesn’t progress… We watch her everyday and we just get used to her weakness… But if we compare Inga’s mobility now and 41 weeks ago we clearly see that SMA took its toll. Nine months ago she was able to stand up, she was able to walk with support, she could climb sofa and little chair. Now we almost forgot about all those activities. She barely crawl on four now, she still sits but not so straight anymore. Even in the water she doesn’t move her legs so quickly as she used to. SMA progresses… How long we need to wait for a drug?!

This week Inga’s got amazing gift: Pappa Pig – the one with hat and scarf, the one who climbed Noshaq, was sent to her by friends who won charity auction. Big, big thanks to them!!! Peppa waits for another climbers she could help to reach any other high summit