So…. We have just started our 2nd year with SMA. Last year was very difficult for us. It was a year of our fight against disease, year of lost hopes, year of fear about Inga’s future. Year of helplessness. A year of friends’ help and support. We try to do a lot to help Inga […]

So – here is 52nd week… A year since diagnosis. It is very tough day for us… We hate SMA!!! Thank you for being with us through this whole year!

Inga got her new long leg splints, so-called Kafo. They stiffen her very weak legs. In these splints Inga may stand itself!!! Of course she needs assistance because every balance change may cause a fall. It’s amazing to see Inga standing! We realized now that Inga is pretty high. Although Inga has almost 3 years […]