It is already 10 weeks since diagnosis… Live goes by but time seems to stop for us. Each day we’d like turn back time. In fact we’d like to turn back disease, throw it away from our lives, from little body of our beloved Inga. We’d like to see her not only happy but also healthy…

Although it is very difficult time for us and daddy is not with his family for a while – Inga’s 2nd birthday was a happy moment. Peppa Pig was on birthday cake and Inga got big teddy bear, which is bigger then Inga itself 😉

This week we attended science project ordered by pharmaceutical company working on SMA drug. Company representative visited us and conducted an interview. Long 3 hours of questioning and writing many notebook pages. We hope it helps Inga to join one of clinical trials planned to be open later this year and next year. Maybe that interview will matter…