“It’s not the way it supposed to be.. it’s not, it’s not…” We supposed to be a normal family with two beautiful, smart kids. It was so obvious they supposed to be healthy as well. But – 14 weeks has just elapsed and we still ask: why Inga is so ill? Is it a kind […]

Number “thirteen” has always brought us some luck and happiness. But is there anything we call luck these days? Shall we be happy only if Inga recover? We try to find happiness in everyday life which is not easy for us. Everywhere the shadow of SMA is just behind us… We smile a bit because […]

12 weeks with SMA… It is still hard to believe In it. It’s hard to accept it. We do know a lot about SMA now but still need to learn a lot as well. We wish we wouldn’t have to… May in Wroclaw is really beautiful this year. Weather is like in the middle of […]

It’s a long weekend in Poland these days. We’ve always liked long weekends. Not because we could go somewhere (all places are overcrowded) but we’ve liked to be together at home and do “nothing”. Nowadays we can do “nothing” just after: – Vojta physiotherapy 2-3 times a day by 15 min – Legs and thighs […]