SMA monster is for more than half a year with us so we should get used to it. It has creep into our lives and rules it. It takes our daughter’s strength. But slowly we have gentled this monster. We do not cry everyday but only from time to time. We have stopped to ask “Why?” because no one knows why Inga is ill. SMA monster made us indifferent to other things then Inga’s condition. We have never been interested much in politics but nowadays we do not care at all… no emotions… no hard talks… Even sport became less important. What matters most is SMA drug invention news.