It’s been already two weeks since SMA drug (Spinraza) is approved in USA. We think about that all time long. Why we don’t live in States? Why they can treat SMA there but we cannot do it here in Europe?

Company Biogen explains why Spinraza is so expensive (750 000$/year): for the last 10 years they’ve spent money on research, clinical trials, labs equipment etc. We understand that, but more than half a million dollars per year is still too much! Company says that drug will bring back to life whole family – and we think they’re right. Since diagnosis we live somewhere a side, in a different world… We do not belong to the world of happy people anymore. We wish upcoming treatment will cure our daughter and our whole family…

Please remember about Inga while you thinking about any charity donations. You can help by liking and sharing Inga’s website posts. You can also help visiting https://www.justgiving.com/crowdfunding/Inga-FIGURKA
Thank you all!!!