Inga got leg splints. Unfortunately we waited for them so long (since September) that they are not appropriate anymore. They give support only for ankles, and that is not enough. Inga bravely suffered repeated measurements and plaster casting. Now we wait for longer splints that will support weak knees and thighs.

Inga speaks beautiful and clearly, but there are some funny expressions which she flips. With all the sad things around, it gives us some smile. E.g. Colachote (for Chocolate) and many more.

It’s already been a month since the FDA approved a drug for SMA in the USA. We still wait when EMA will finally make a decision in the European Union…