Inga learns to walk in splints and with a walker. This is a huge effort for her, but also a great joy. She hasn’t walked for almost a year now (around April 2016 she stopped to walk and stand). Leg splints are great, they makes her legs boned so she can lift her whole body standing. Without them unfortunately Inga couldn’t stand, with – it is possible again!!!

In The United States they began planning SMA screening for all newborns. If diagnosed, they will immediately treat infant with Spinraza (SMA drug). Great – because once medicine is given symptoms of the disease almost don’t show up. We wait for spinraza in Europe!!!

Thank to all who help us rise SMA awareness and help us to survive our fight against SMA.