Have we already written once how tired we are? We wish to have normal life, usual problems… We do not complain about anything particular. Why and who we should complain to then? But we would like to at least explain why sometimes we do not keep in touch with some of our friends; Why we have not enough time for anything; Why we’re always in hurry to get back home. Most important thing for us is our day schedule. Exercises, standing frame, splints, walker, massages, stretching – that is our priority. There is nothing more important. Only day-to-day routine can keep Inga fit while waiting for treatment. Inga intentionally feels and knows when is a time for certain exercises. It is hard to convince her to do them out of schedule. We must keep times quite strictly then. There are some exceptions but we try to limit them to minimum. Sorry to everyone who’d like to spend more time with Inga. But time and Inga’s physical condition is our priority. On the other hand we cannot forget about her older brother Max. He is 10 years old but because of his sister’s condition he had to grow up a bit earlier. There is no other thing we waiting more then have a usual, normal day without any concerns about future…