After 69 weeks since Inga was diagnosed with SMA there is finally possibility to but SMA drug in Europe. It’s the best week we have for the last year. The only problem is price… One injection costs 90 000 euro. Inga would need 5 injection in the first year of treatment and 3 in the second. How we can deal with such a great amount of money…? We’ll do our best!

Thank to everyone for your help! We have just received some donations on our crowd founding site. Every single cent counts! https://www.justgiving.com/crowdfunding/FIGURKA

Last Saturday in Warsaw charity event took place. Thanks to organisers and to everyone who came and gave his support. It is important to make such an events to raise SMA awareness in society. Thank You!

“Plant dreams grow miracles”. Miracle to us would be a normal life we had before diagnosis…