Weeks go by… There are more countries in Europe which decided to reimburse SMA treatment (last week it was e.g. Hungary). We do not wait until Spinraza will be availble in UK and try to find a treatment anywhere it is possible. It is not easy but with your support we do as much as we can. Thank You!
Last week we wrote about physiotherapy sessions. Earlier this year we’ve visited Italy for few appointments in hospitals. Specialists examined Inga in many different ways. One of tests was about Inga’s metabolism – during examination Inga looked like astronaut. We hope that this space outfit was the symbol of upcoming big step for our family which would be start of SMA treatment. Keep fingers crossed!