Looks like we need to start counting time since diagnosis in months… Anyway – each week we want to do something, to meet someone, to know about SMA – we want create Inga’s “SMA Reality” in our own way!
Finally “Crocodile” arrived – new support car for Inga. It is hard to walk – she prefer Peppa Pig to use it – but we encourage her by making films and showing her afterwards. Our little movie star 😉 We believe that by using her leg muscles we will keep her stronger for long…
We’ve attended Information and Support Day organised by SMA Support UK – it was great experience to be there! (more info in another post)