Time goes so fast… Gradually we realize what disease we’re dealing with… We do the physiotherapy with Inga 2-3 times a day, we do feet massage, we try to encourage her to stand and to do at least few steps, we do hydrotherapy. We do so much but we can forget about progress… When you’re affected with SMA word “progress” refers only to disease…

Legs are weaker every day. Our hearts are broken when you see Inga trying to stand up… WHY!!??

We must to everything to put Inga on clinical trials. That’s our priority!

Last weekend FightSMA Research Conference took place in Alexandria, VA, USA. During “SMA Clinical Trial Symposium” many pharmaceutical companies representatives met together and had very interesting lectures. We DO really count on them and their progress in cure SMA drug invention!