Do you remember how Inga said she wants to become a ballet dancer? With great joy that she has such a beautiful dreams but also with fears about reality, we tried to explain to her that this could be a bit difficult. Then Inga stunned us with her performance, completely ignoring her disability: https://www.facebook.com/IngaFIGURKA/videos/427989898000228/ Last week, […]
Last week Inga had examinations in Milan. They all went well. Eye examination is most important because of the potential side effects of the therapy. In the early stages of the clinical trial, some of the animals undergoing treatment lost their sight. So far, however, no complications have been found among the children taking part […]
Today is a very important day for Inga – the birthday of her beloved mother Gosia. Mother, who was with her from the first second of her life. Mother, who was the first to notice the delay in Inga’s motor development. Mother, who ordered daily rehabilitation, while others said that Inga is just a lazy […]
Last week Inga had another visit to the hospital. This time, a check-up in London. First, physical fitness was tested. Physiotherapists were full of admiration for Inga for the precision and diligence of doing all the exercises. In addition, they noticed improvement in Inga when it comes to the power and speed of doing exercises. […]
Last week we visited again Mrs. Alex, who using different orthopaedic equipment can apply Inga a lot of interesting exercises. Despite the hot day, the girls worked hard, and the parents watched carefully to repeat the exercises at home every day. And our Inga, who subconsciously feels she is stronger, most exercises performs with pleasure […]
Do you remember Inga’s birthday crowdfunding? Thank you for such a large share and support. Thanks to the collected funds, Inga attends hippotherapy classes almost every week. As we have written many times – she loves it very much, and we have the assurance of the physiotherapists that it is very helpful for her (especially […]
Last week Inga had another visit to the hospital in Milan. But staying in Italy is not just examinations and treatment. It is also an opportunity to play in the water, which is also a great rehabilitation for Inga. Inga can move without using splints and walking sticks. And in the attached movie he can […]
After last week’s post about rehabilitation, a few people asked us why we exercise so much with Inga, since she takes the medicine and we believe that it works? However, with the spinal muscular atrophy that matter is not so simple … The drug affects the production of missing protein (SMN), which patients with SMA […]
Last week Inga spent hard exercising during a rehabilitation camp at the Neurorehabilitation Center. We are very proud of her! Similarly, all of the clinic’s employees are proud of her, including Mrs. Sylvia from the reception with whom Inga wants to race in wheelchairs;) We thank all the physiotherapists for their hard work. And thank […]
This week Inga spends at rehabilitation camp at the Neurorehabilitation Centre. She does many exercises to become a bit stronger and a little more efficient. We are very proud of her! We cannot stop thinking about the last week’s information about the new drug (Zolgensma), which has just been approved for use in the US. […]