It is already 10 weeks since diagnosis… Live goes by but time seems to stop for us. Each day we’d like turn back time. In fact we’d like to turn back disease, throw it away from our lives, from little body of our beloved Inga. We’d like to see her not only happy but also […]

Today is Inga’s 2nd birthday. „Cheers! Stay in good health!” – we’d like to shout. Let’s shout together! Let the World know about Inga! We’ll do everything we can to make her life happy and safe. Inga – we LOVE you all! “

“It’s Inga’s birthday this week (20th April)… Last year at this time we were all waiting for her first steps. Were waiting and waiting and wait for nothing. She’s almost two now and it is impossible for her to walk even with support 🙁 . We didn’t expect things would go that way… But scientists […]

Time goes so fast… Gradually we realize what disease we’re dealing with… We do the physiotherapy with Inga 2-3 times a day, we do feet massage, we try to encourage her to stand and to do at least few steps, we do hydrotherapy. We do so much but we can forget about progress… When you’re […]

Looks like we need to start counting time since diagnosis in months… Anyway – each week we want to do something, to meet someone, to know about SMA – we want create Inga’s “SMA Reality” in our own way! Finally “Crocodile” arrived – new support car for Inga. It is hard to walk – she […]

Last weekend we’ve visited „Information and Support Day” organised by SMA Support UK – established charity that supports and empowers anyone affected by Spinal Muscular Atrophy. During workshops we were able to know, how to deal with SMA in everyday life. Some tips and practical issues have been told. We’ve talked about taking care of […]